Various research groups with ongoing projects in the areas of personal data protection, reuse of public sector information and open data organised a seminar on October 29, 2020, on reuse and big data in the field of health in which researchers, managers and policymakers from different disciplines participated. Starting from the premise of the special importance that access to health data has as a resource for research, management and development of health products, treatments and interventions and, at the same time, (...) its consideration as a special category of data that is particularly sensitive, private and protected, this document seeks to systematise the main conclusions reached. (shrink)

En el presente trabajo se parte de que la innovación requiere transmisión de información. En la actualidad, el contenido de la transmisión de información se halla sometido a una regulación legal, habitualmente la propiedad intelectual, donde los agentes intervinientes y su requisito de sistema de permisos dificultan la transmisión libre. Para solucionar esta problemática, se están promoviendo dos tipos de soluciones: el primero mediante código legal y el segundo mediante código informático. Estas soluciones, que se fundamentan en razones morales, tienen (...) consecuencias políticas y determinan el modelo de sociedad que podemos construir mediante el conocimiento transmitido. (shrink)

El contenido de la obra se halla dividido en dos partes, una primera teórica y otra segunda práctica. En la primera parte se realiza una explicación analítica del ciberactivismo mientras que la segunda se centra en reflexiones sobre aspectos concretos que pudieran ser útiles para quien desee planificar alguna acción.

Open science (OS) is considered the new paradigm for science and knowledge dissemination. OS fosters cooperative work and new ways of distributing knowledge by promoting effective data sharing (as early and broadly as possible) and a dynamic exchange of research outcomes, not only publications. On the other hand, intellectual property (IP) legislation seeks to balance the moral and economic rights of creators and inventors with the wider interests and needs of society. Managing knowledge outcomes in a new open research and (...) innovation ecosystem is challenging and should become part of the EU’s IP strategy, underpinning EU policies with the new open science–open innovation paradigm. (shrink)

Background: The coronavirus disease 2019 pandemic is impacting the delivery of healthcare worldwide, creating dilemmas related to the duty to care. Although understanding the ethical dilemmas about the duty to care among nurses is necessary to allow effective preparation, few studies have explored these concerns. Aim: This study aimed to identify the ethical dilemmas among clinical nurses in Spain and Chile. It primarily aimed to identify nurses’ agreement with the duty to care despite high risks for themselves and/or their families, (...) describe nurses’ well-being and describe the associations between well-being and the duty to care. Research design: Cross-sectional self-reported anonymous data were collected between May and June 2020 via electronic survey distribution. Ethical considerations: The Institutional Ethical Review Committees in both countries approved the study. Findings: In total, 345 clinical nurses answered the primary question about the duty to care for the sick. Although in the total sample 77.4% agreed they have a duty to care for the sick, significant differences were found between the Spanish and Chilean samples. Overall, 53.6% of the nurses reported low levels of well-being; however, among those reporting low well-being, statistically significant differences were found between Spanish and Chilean nurses as 19.4% and 37.8%, respectively, disagreed with the statement regarding the duty to care. Discussion: Participants in both countries reported several ethical dilemmas, safety fears, consequent stress and low well-being. These results suggest that prompt actions are required to address nurses’ ethical concerns, as they might affect their willingness to work and psychological well-being. Conclusion: Our findings shed light on the ethical dilemmas nurses are facing related to the duty to care. Not only has the coronavirus disease 2019 pandemic given rise to ethical challenges, but it has also affected nurses’ well-being and willingness to work during a pandemic. (shrink)

The aim of the present study is to analyze individual differences in academic self-efficacy within a population of Unaccompanied Foreign Minors from the European cities of Ceuta and Melilla. Variables describing educational level and length of stay were considered in a sample of 377 individuals being cared for in different youth centers. Of these, 63.4% belonged to the group who had stayed at the center for less than 9 months and 36.6% reported a length of stay of more than 9 (...) months. The age of participants ranged between 8 and 17 years old. Once the quality parameters of the instrument were elaborated, reliability and validity was confirmed through Confirmatory Factor Analysis using Structural Equation Modeling methodology. Data collection was then initiated. The results overall indicate that 87.6% of those who completed the questionnaire reported a higher level of self-efficacy with regards to working with any classmate, whilst at the same time seeing themselves as capable of achieving good marks. ANOVA results indicated significant differences with respect to educational level and length of stay. In this regard, students who had received professional training and had been at the Center for more than 9 months, were the ones who developed greater academic self-efficacy for spending more time working when tasks were judged to be difficult. The results obtained demonstrate that any intervention will be positive as long as it promotes different institutions to develop strategies that cater to a length of stay of more than 9 months and target education, academic self-efficacy, socialization and strengthening the future workforce. Such interventions can be directed through new European, Spanish or local level policies. It is clear that institutions still have a lot of work left to do. (shrink)

In this paper I shall approach, from the luck egalitarianism perspective, to the problem of distributive justice in the health care. For that purpose I will follow an argumentative strategy based in some of the statements argued by Ronald Dworkin and Shlomi Segall on which the origin of luck egalitarianism relays. Even though it is truth that Rawls at the time of proposing the principle of fair equality of opportunities, he intended to mitigate the social inequalities originated by luck; for (...) some egalitarian philosophers such as Ronald Dworkin, Rawls’ argument resulted inequitable since it did not consider the binomial liberty-responsibility. The consideration of responsibility as a criterion of distribution of healthcare resources will be tested and studied in three points. First of all I will expose the general aspects of luck egalitarianism and I will define the position of Daniels and Segall regarding healthcare assistance. In second term, I will go back to the distinction made by Dworkin between “brute luck” and “option luck” and I will expose his proposal about the resources equality and the healthcare model based on the ground of the liberty-responsibility binomial that he defends. In third place, I will analyze the relationship between liberty and responsibility in healthcare. This way I shall intend to demonstrate the advantages and disadvantages that may arise from taking individual responsibility as a criterion for the distribution of resources. (shrink)

Introducción al Dossier "Bioética después de la COVID-19. Derecho a la salud y garantía de bienes públicos en el contexto post-pandemia".

El pasado 4 de marzo el Ayuntamiento de Madrid reunió a 1000 personas, organizadas en 100 mesas de 10 personas cada una, para discutir sobre propuestas donde destinar los 100 millones de euros de los presupuestos participativos. Estas 1000 personas, además, fueron seleccionadas al azar para componer una muestra representativa de la ciudad. ¿A qué paradigma democrático responde esta experiencia? ¿Para qué se utiliza la selección de ciudadanos al azar? ¿Este ejemplo puede suponer una sustitución de la democracia representativa? Con (...) una aproximación teórica a la iniciativa y con una conversación con Yago Bermejo, coordinador del equipo que desarrolló el proceso, este artículo trata de resolver algunas de estas preguntas y abrir nuevas reflexiones. (shrink)

Chris Stewart’s account of his experiences after purchasing a farm in Andalusia, in an isolated farmhouse in the mountains adjacent to Granada, are far from the traditionally bucolic depictions of a pastoral landscape, in which the drawbacks of agricultural life become unquestionably compensated by the bliss of life in nature. Even though, as the title indicates, he seems to be a born romantic and optimist, undefeated by the inconveniences of a life without the everyday commodities of a First-World country in (...) the twenty-first century, his memoir narrative is soon balanced by his own testimony, which provides a realistic counterbalance to Stewart’s initial idealistic portrayal of life in rustic Alpujarras. Nonetheless, as this article intends to demonstrate, it is precisely this necessary demystification of the rural setting prevailing in certain areas in Andalusia that becomes crucial for the establishment of an essential complicity with the audience, thereby trained to appreciate—and even become enthralled by—the reality of the rural surroundings which the contemporary reader can no longer envision as merely a place of “vales and hills” softly covered by “a host of golden daffodils”. El relato que lleva a cabo Chris Stewart acerca de sus experiencias tras adquirir una finca en Andalucía, en un lugar apartado de la sierra lindante con Granada, se aleja de las descripciones bucólicas de paisajes pastorales en los que las desventajas de la vida agrícola quedaban incuestionablemente compensadas por el gozo de la vida en mitad de la naturaleza. Incluso pese a que, tal y como el título de su novela indica, Chris Stewart parece ser un romántico y un optimista de nacimiento, que no se deja vencer por los inconvenientes de una vida sin las comodidades cotidianas de un país del primer mundo en el siglo xxi, su memoria-narrativa se ve inmediatamente equilibrada por su propio testimonio, que proporciona un contrapunto realista al idealizado retrato inicial de la vida en las rústicas Alpujarras. No obstante, como el presente artículo pretende demostrar, es precisamente esta necesaria desmitificación del entorno rural de ciertas zonas de Andalucía lo que resulta crucial para poder establecer una esencial complicidad con el lector, que llega, de este modo, a valorar, e incluso, a sentirse fascinado, por la realidad del contexto agrario, el cual deja ya de percibir meramente como un lugar de «valles y colinas» delicadamente cubierto por «una cohorte de dorados narcisos». (shrink)

The analysis of the confession in Foucault's work based on the comparison between Les anormaux, Mal faire, dire vrai and Les aveux de la chair shows one of the most relevant displacements in Foucault's work, which constitutes a good part of the essence of what has been called the last Foucault: the relation of the subject and the truth. An attempt will be made to account for this turn, analyzing the look at primitive Christianity of the last Foucault and the (...) relationship of such reflection in the analysis of the hermeneutics of the self. The last reflections on the confession in Les aveux de la chair will show the meaning of the ethical inquiry of the last Foucault that reproduces the double critical and ontological character of anarcheology. (shrink)

The following article has as aim identify how the analysis is carried out in Sartre’s work on the phenomenon of the language. Particularly, we will place in the problem of the intersubjective relationships and his relation with the language. We will do this interpreting the postulates on this subject matter, specifically from The nausea, The being and nothing and the Critique of the dialectical Reason. This will allow us to place the thought of our author in the context of the (...) contemporary philosophy. (shrink)

En las investigaciones sobre fisiología cardiovascular desarrolladas por William Harvey es posible distinguir entre dos teorías que responden a preguntas diferentes. La primera de ellas, que denominamos teoría del movimiento circular de la sangre, intenta dar una respuesta al problema sobre la cantidad de sangre que se mueve dentro del sistema. La segunda pretende dar cuenta de las causas de que la sangre se mueva y la denominamos teoría de las causas del movimiento de la sangre. En este trabajo, presentamos (...) una reconstrucción estructuralista de la primera de éstas, y mostramos que posee todos los componentes considerados esenciales para cualquier teoría, de acuerdo con la concepción estructuralista de la ciencia. (shrink)

Implementar el mapa de empatía para activar la autorregulación emocional del alumnado al inicio de la asignatura, es el objetivo de la investigación, la muestra es opinática, formada por treinta estudiantes. La metodología cuasi-experimental mixta verificará la hipótesis: el mapa de empatía activa la aproximación emocional. Los resultados demuestran una falta de correlación entre las percepciones a priori y a posteriori de la presentación de la asignatura, y una correlación positiva entre los esfuerzos y los resultados que se desean obtener. (...) Como conclusión, se descubre la importancia de proporcionar herramientas catalizadoras que aceleren la autodeterminación cognitiva y emocional del alumnado. (shrink)

Este artículo expone la posición frente al concepto de utopía adoptada por una serie de pensadores de la tradición dialéctica, de Hegel a Bloch y Ellacuría. Persigue poner de manifiesto y reivindicar el modo característico en que dicha tradición afronta la cuestión de la utopía. Un lugar especial en nuestra exposición lo ocupa el pensamiento de Ellacuría, pues en él resulta significativo que lleva a cabo toda una reivindicación de la utopía entendida como ideal en el marco de una filosofía (...) muy próxima al marxismo hegeliano. Ello nos permitirá poner de manifiesto la especificidad del planteamiento de Ellacuría y, al mismo tiempo, la pluralidad de posiciones respecto a esta problemática existentes dentro de la tradición de pensamiento hegeliano-marxista. (shrink)

Millán-Puelles justifies classic realism on the basis of the human person's dignity, analyzing subjectivity as one of conscience and volition. The author suggests that Millán-Puelles recognize in the relational openness, equally constitutive of the person, the formal reason of the subsistence of its inmanent perfection.

The Post-genomic Era includes features both from a methodological and epistemic point of view and from an ontological perspective. Firstly, it incorporates new methods of high-throughput sequencing of DNA and RNA, and the development of complete genomes that allow a precise reference of the molecular results obtained. In addition, from an ontological perspective, the centre of gravity of the molecular processes is placed on the expression of genes, and the way in which such expression is regulated; these features turn the (...) attention towards the study of Gene Regulatory Networks, and in particular to the role of RNA. This new molecular-biological perspective based on new methodologies and approaches is affecting the existing Molecular Genetics Theory including the definition of gen and Central Dogma of Molecular Biology. An important philosophical challenges posed by this new situation is the question whether there is a sophistication of the present theory or a New Theory of Molecular Genetics and whether there is an incommensurability between this theory and the accepted theory. In this work we evaluate these changes in the light of Kuhn’s theory of scientific revolution in order to propose an alternative between a moderate and a strong view. According to the moderate one, the Post-genomic changes do not properly involve a paradigm shift or, if they do, they constitute a minor revolution. The strong view considers that, the anomalies disclosed in the Molecular Genetics Theory at conceptual and methodological level and the Post-genomic changes they lead to suppose a scientific paradigm shift. (shrink)